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Títol: Understanding Bureaucracy in Health Science Ethics: Toward a Better Institutional Review Board
Autor: Bozeman B (Bozeman Barry)2 Slade C (Slade Catherine)1 Hirsch P (Hirsch Paul)3
Referència: AMERICAN JOURNAL OF PUBLIC HEALTH
Volum: 99 Issue: 9
Pàgines: 1549-1556
Any: 2009
Codi ISBN/ISSN: 0090-0036
Tipus de document: Article
Paraules clau: HUMAN PARTICIPANTS; ACCOUNTABILITY; CHILDREN; HOPKINS; PAINT; RISK
Idioma: Anglès
Resum: Research involving human participants continues to grow dramatically, fueled by advances in medical technology, globalization of research, and financial and professional incentives. This creates increasing opportunities for ethical errors with devastating effects. The typical professional and policy response to calamities involving human participants in research is to layer on more ethical guidelines or strictures. We used a recent case the Johns Hopkins University/Kennedy Kreiger Institute Lead Paint Study-to examine lessons learned since the Tuskegee Syphilis Study about the role of institutionalized science ethics in the protection of human participants in research. We address the role of the institutional review board as the focal point for policy attention.
Adreça: Arizona State Univ, Consortium Sci Policy & Outcomes, Tempe, AZ 85287 USA 2. Univ Georgia, Dept Publ Adm & Policy, Athens, GA 30602 USA 3. Georgia Inst Technol, Sch Publ Policy, Atlanta, GA 30332 USA E-mail Addresses: slade3534@comcast.net